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How this Penwortham girl can’t get operation on the NHS because her condition is ‘too severe’

Posted on - 30th April, 2019 - 7:00pm | Author - | Posted in - Health, Penwortham, Preston News
Caidi Gregson is unable to walk and relies on a wheelchair to get around
Caidi Gregson is unable to walk and relies on a wheelchair to get around

A campaign has been launched to help raise thousands of pounds for life-changing surgery for a Penwortham girl.

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Caidi Gregson has a condition which leaves her unable to walk and suffering a large amount of discomfort.

The four-year-old has Cerebral Palsy Diplegia and needs surgery to correct her muscle spasticity.

Doctors would need to cut the nerve rootlets in her spinal chords which are sending abnormal signals to her muscles.

Caidi often suffers severe cramps in her legs.

Caidi Gregson
Caidi Gregson attends Lostock Hall Primary School

With year-long waiting lists and her condition being too severe to meet the lower-level NHS funding option her family have resorted to trying to fund the £16,000 needed themselves to get Caidi onto the waiting list.

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Caidi’s mother Sam Gregson explained: “The operation is only funded on the NHS when the condition is at a lower level. Caidi’s Cerebral Palsy is at level four, which is the second highest.

“She will still be classed as an NHS patient and will be on the same waiting list as everyone else, which is about a year. We cannot go on the list yet as we need to find the money first.

“After the operation, Caidi will be given three weeks of intensive physiotherapy but she will need more, so Tree of Hope charity will be helping us get funding for the physio -between £30-40k.”

“The surgery will be life changing for Caidi, it will stop her pain for life and she would not need any further medication. She will gain a new lease of independence, enabling her to join in and get around by herself more.”

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A fundraising page for the Tree of Hope campaign for Caidi has been set up looking to raise £30,000.

Diplegic Cerebral palsy is a version of the disability which is characterised by frequent and painful spasms and muscle tensing, most notably in the legs, this affects the joints and mobility (particularly in Caidi’s case).

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