A Preston dad is set to tackle the London Marathon to raise money for a charity close to his family’s heart.Advertisement
Jamie Wareing, 30, will run the 26.2 mile race to raise money for the Tuberous Sclerosis Association after his one-old-daughter, Elsie, was diagnosed with Tuberous Sclerosis Complex.
Elsie has infantile spasms, a form of epilepsy, and is monitored every month by different specialists in Preston, Liverpool and Manchester.
Read more: Chief executive of Derian House childrens hospice quits
Jamie hopes to raise £2000 for the London Marathon, on Sunday 22 April, and has set up a Just Giving Page.
Jamie Wareing, Ingol, said: “Elsie’s spasms are currently under control and she’ll hopefully grow out of them.
“Unlike many people with this condition Elsie has developed perfectly, meeting all targets and basically developing like any other child would without this condition.
“She has a few skin problems because of the condition but nothing serious or too noticeable at the minute.
“She’s a happy little girl, attends nursery three days a week and has a huge loving family.
“I’m fundraising for TSA because unlike Elsie there’s many children that aren’t so lucky and have many problems – Elsie may have in the future but we are staying positive and have a great team of specialists that look after her. ”
Tuberous Sclerosis Association provides support and information to families affected by Tuberous Sclerosis Complex.
Jamie continued: “The charity look after families like ours, and also help to fund cures for the condition.
“Not many people know about the condition so I want make people more aware of it.”
Jamie is hosting a charity evening event to support his fundraising efforts at Preston Golf Club on Saturday 24 February.
From 7pm, the evening will hear music from live band The Funkoustics, a photo-booth by MOP Photography, raffle prizes, food, and a late bar.
Each ticket for the evening is priced at £15 per person.
You can help Jamie’s fundraising efforts by donating to his Just Giving Page.
What do you think about Jamie’s fundraising? Have you taken part in any charity events recently? Let us know in the comments below