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A fundraising fare for woman with rare condition to be held on Saturday

Posted on - 9th April, 2015 - 7:00pm | Author - | Posted in - Ashton-on-Ribble, Charities, Events, People
Christie as a child, diagnosed with condition

Christie as a child, diagnosed with condition

A woman who suffers from a rare condition is holding a charity event this weekend, in hope to raise over £12,000 for treatment.

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A community fare will be held this Saturday to help raise money and awareness for Melkersson-Rosenthal syndrome.

Christie Newport from Ashton-on-Ribble was diagnosed with the syndrome as a teenager. Now 33, she hopes to raise £12,400 for treatment in America.

Christie and her partner Amy have attracted both national and local attention by appearing on the Jeremy Kyle show and more recently The Bee radio, as a way to spread the word about the condition.

The condition causes Christie to be in pain with the slightest of movements and also causes swelling to her lips and face. The complexity of the rare condition has given the couple no choice but to pay the costs for stem cell treatment in California.

Various medicines and even plastic surgery hasn’t helped Christie and her health has worsened to include type 2 diabetes, and left her unable to have children.

Amy has given up her job to care for Christie and said on the couple’s fundraising page, “She is an amazing person and her main dream was always children and now she can’t have that I’m hoping to get her this treatment that will stop her being in constant pain stop her having attacks of the illness that land her in intensive care and get her somewhere near to a normal life.”

Christie said, “My whole body swells and the agony is indescribable. I never want another child to go through this, I watch my young nephew like a hawk terrified that this could happen to him. I want to be the guinea pig for me to get better and so that no one else has to suffer like me.”

The event this weekend has activities for the whole family including a tombola, raffle and plenty of arts and crafts.

The event will start at 10am on Saturday April 11 at Cottam Community Centre, Haydocks Lane, Cottam and the couple are urging anyone who can to attend.

Donations can be made through the Go Fund Me page, here. 

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